硬皮病 Scleroderma

全身性硬化症（Systemic Sclerosis，縮寫為SSc）是一種罕見的疾病，導致皮膚（scleroderma 硬皮症）、肺部（SSc-ILD）和其他器官出現瘢痕，這些變化可能讓人毀容、嚴重殘疾，甚至有生命危險。全球估計有超過兩百萬人患有全身性硬皮病，而這個疾病主要好發於年齡大約在25到55歲之間，處於生命巅峰期的女性。全身性硬化症是一種具有不同病程的複雜罕見疾病，它表現出多種涉及多個不同器官的症狀，這意味著很難識別，進而延誤早期和準確的診斷。

Systemic sclerosis (SSc) is a disfiguring, disabling and potentially fatal rare disease that causes scarring of the skin (scleroderma), lungs (SSc-ILD) and other organs. Worldwide it is estimated that over two million people have systemic sclerosis and it affects mostly women in the prime of their lives, between 25 and 55 years of age. Systemic sclerosis is a complex rare disease with a variable course. It presents with a range of symptoms involving several different organs; this means it is difficult to recognize and this can delay early and accurate diagnosis.